A national charity is hosting an annual gala that benefits the Rett Syndrome Research Trust. It has become a premiere event in the Los Angeles area. Now in its 8th year, the event will take place on Thursday, October 20, 2016, at the SLS Hotel in Beverly Hills. This year’s gala is co-chaired by three families—Stephanie & Andy Bohn, Heidi & Jonathan Epstein, and Marci & Rudy Valner—that have daughters that struggle with Rett Syndrome. The event’s name has changed to Reverse Rett LA to reflect the growing awareness of Rett, the fact that the disorder has been reversed in mouse models, and the increasing number of families involved.
The event will feature cocktails, hors d’oeuvres, an auction and more. Sponsorship opportunities are available in various levels and include tickets to this special evening.
About Rett Syndrome:
A devastating neurological disorder that affects primarily girls and women.
More than 350,000 afflicted around the world, including 16,000 in the U.S.
Children with Rett develop normally in the first year or two of life; then they regress, with most losing the ability to speak and walk and developing a host of other painful symptoms.
The prevalence of Rett equals that of Cystic Fibrosis, Huntington’s, and ALS, but research is vastly underfunded in comparison to those diseases.
The cause of Rett Syndrome is known—a random mutation on a single gene—setting it apart from other neurological disorders and giving researchers a target.
Rett has been proven to be reversible in animal models, and research is now focusing on translating that achievement to girls and women with the disease.