By Hillel Aron
By Joseph Tsidulko
By Patrick Range McDonald
By David Futch
By Hillel Aron
By Dennis Romero
By Jill Stewart
By Dennis Romero
And that’s the way Ofri likes it. In a lecture she gave to the emergency room staff recently, she said, “I hate it when patients are like me”—white, educated, and neurotic.
And she’s not all talk. In 2005, she and her husband, a computer programmer, uprooted their family to live in Costa Rica for a year. But when she realized she was pregnant with their third child, “that threw a wrench in the works,” she says, “but we decided to soldier on.”
Ofri says she had always found Costa Rica to be friendly—”The culture is so warm and inviting,” she says—but when she went into labor, she realized there was no one to leave her other kids with. “We literally had no one. [We had] neighbors, but we really didn’t know them.” The experience, she says, made her think about her patients’ journeys to America.
”All the time I was not feeling confident that I could explain myself. I had to rely a lot on nonverbal assistance. I thought about my patients and how they are so sick and they are just trying to make themselves known.”
An emergency Medicaid plan allows Julia to pay only about $22 a month for the 15 different medications she must take to lessen the symptoms of her enlarged heart. She picks them up at Bellevue, but since she’s too weak to climb the stairs at the subway station, the hospital provides transportation.
Her weekly routine at Bellevue includes blood tests, questions from doctors, and meetings with social service workers and a heart failure group. She describes the group as an awkward meeting where her doctors gather and speak only in English about her heart. “I never understand what they say,” she says. The hospital also provides her weekly with a psychiatrist in addition to her regular medical appointments.
Julia is always tired. Her older sister says she is “tranquil” from the pills she takes every day, but there is also in her a kind of resigned defeat. She is at risk of being deported, but only if she doesn’t die first. But she speaks about her decaying heart as if it were another bruise on her frail arms—a result of some recent blood tests. The only time her face scrunches with worry is when she thinks about her children losing their mother. Then she breathes out a long puff of air as if to deflate her whole body.
Julia’s long, flat hair is jet-black, without a fleck of silver. Her skin is golden and smooth, but she has dark circles under her piercing brown eyes. Her fingernails are polished and maintained, but her hands look aged and worn down. Her voice is high-pitched and slow, and her shortness of breath makes her sound a little choked up.
When she leaves Bellevue each week, she carries a brown paper bag full of medication refills. She’s used to the routine: one pill to thin the blood, one to control the thyroid, another to control the water levels in the heart, two to maintain her blood pressure, another to help get to sleep, and a pill to control depression.
She also comes back with sheets of printed paper that describe her blood test results, her next appointment, the names of nurses who have poked her with needles. It’s all in English. She and a social worker go over each one and she writes down translations where she can: Marzo instead of March, cinco instead of five.
”My daughter asks me, ‘Why don’t the other parents have to go to the hospital when they are sick?’ “ she says with tears in her eyes. “I have to tell her that someday, hija, I will have to go to the hospital and not come back.”
Over the past six months, Julia has lost a lot of weight, bringing her to a mere 100 pounds. Her arms hang loosely from her bony shoulders. Her belly is the only part of her body that is swollen—a side effect from the H2O blockers she takes to control stomach acids from eating her insides. She rarely leaves the apartment. Dressed in soft cotton pajama pants and an enormous faded T-shirt, she spends days coloring in her daughter’s old coloring books. She watches television—memorizing the schedules of favorite telenovelas like Hasta que el Dinero Nos Separe (Until Money Do Us Part), and talk shows like ¡Despierta América! (Wake Up, America!) and the goofy El Gordo y la Flaca (The Fat Man and the Skinny Lady). She is too weak to do anything else—to climb stairs, to cook, or to walk. Even as she sits at her kitchen table, she fidgets—searching for an ideal position in which she can remain comfortable until the side effects from her medication kick in and she becomes nauseous or drowsy. Her door is always unlocked, and the neighbors and their children are constantly streaming in and out of her kitchen. They keep an eye on her, occasionally bringing Tupperware containers of food or books for her children.